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Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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August 13, 2012 by Carrie Ostrea

Meet Jobyna

Hannah and Jobyna, March 2011

Jobyna Casey is a beautiful and spunky 4-year-old girl who lives in Las Vegas.    She is Hannah’s friend, Hannah’s first playdate.   Her mother and I got along so well because we were both determined “Moms on a Mission” to do whatever we could for our daughters.  Her father also works tirelessly to help raise awareness and does events to help raise money for the Children’s Miracle Network.

Jobyna is currently undiagnosed.   At the age of 4 months, she starting having seizures followed by a multitude of other symptoms.  The doctors are baffled and have given the family very few options with the exception of the “take her home and love her” comment.  In other words, they were at a loss as to what to do for Jobyna.

Jobyna is a large part of our motivation for the creation of the LMHF.  Even though we are no longer able to fight for Hannah, we can continue to fight for Jobyna and kids like her.

This video was made by a film graduate student, and it it really hits home because it openly shares what daily life is like with caring for our special children.

Jobyna – Video – IMDb

A mother and father tackle the daily issues surrounding raising a child with undiagnosed special needs, while also trying to take time to be together as a couple.

Click here to learn more about Jobyna, her parents, and their fight.

Filed Under: Blog, Front, Local Rare Kids Tagged With: Local Rare Kids

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Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921