Please take just a minute to sign this and help ensure the vitally important activities of SACHDNC. This is where life saving decisions about newborn screening are made. Please sign and share.
The SACHDNC is the only national venue where parents can contribute their experiences and perspectives to the public deliberations on newborn screening. In addition, the Committee needs to complete it’s deliberations on Pompe Disease so that babies lives will be saved. It is vitally important the Committee’s term be extended until Congressional reauthorization occurs. Any gap in the Committee’s activities could lead to babies’ lives in this country being needlessly lost.
Babies do not have a voice and our community needs to be their voice! Thank to everyone who has already signed!