* ACTION ALERT * PICK UP THE PHONE TODAY!!
Every single person reading this can help us provide HOPE for children diagnosed with life-limiting rare diseases! #CuresNOW
Today, we are calling on patients across America to take action for a United Rare Disease Day of Action. Our goal is to ensure that Congress passes the landmark 21st Century Cures Act, which could help millions of patients by improving the discovery, development and delivery of new treatments.
The bill contains provisions to dramatically increase funding for drug review and medical research, and will encourage industry to develop needed treatments for patients with rare diseases. But time is running out. Congress must pass this legislation this year as patients simply cannot afford another delay in life-saving treatments. Together, we must make sure 21st Century Cures becomes law.