* ACTION ALERT * PICK UP THE PHONE TODAY!! Every single person reading this can help us provide HOPE for children diagnosed with life-limiting rare diseases! #CuresNOW Today, we are calling on patients across America to take action for a United Rare Disease Day of Action. Our goal is to ensure that Congress passes the…
Meet Cecily, LMHF Grant Recipient
When we first met Cecily at our 2015 Rainbows in the Wind Festival, she just captured our hearts! We were thrilled to give her family a professional grade blender earlier this year so she can have pureed real food in her g-tube, and we are excited to know that she has been gaining weight because…
Fox 5 News Appearance – July 2016
#TBT Little Miss Hannah’s dad, Robert Ostrea, and Bethany Lafferty, mom to Little Miss Hannah child Kate, were on FOX5 Las Vegas this summer to talk more about our programs and our events. Thank you Jason Feinberg and your team for continuing to support the work we have been doing for children with rare diseases!
Free Moving Screening – Hook with Robin Williams
FREE MOVIE EVENT – November 20, 2016 Join us for a fantastic FREE event in Las Vegas on Sunday Nov 20th to celebrate the 25th anniversary of a family favorite Stephen Spielberg pirate film complete with the screenwriter himself, James V Hart and his family, actors Dante Basco and Jimmy Madio who played Lost Boys,…
Teal Pumpkin Project
Our family’s teal pumpkin is ready for visitors! We are proud to be joining thousands of families across the US in the #TealPumpkinProject. We have some great non-food treats for kids with allergies and special needs. Do you have a teal pumpkin at your house? Post the picture to our site so we can share…