Today is Nevada’s Big Give Day!! Please consider a donation to the Little Miss Hannah Foundation at http://nvbiggive.razoo.com/story/Little-Miss-Hannah-Foundation – even $10 could help us make a big difference! You can do it all online, quick and easy! Every dollar helps us keep Hannah’s legacy alive and support local families of children diagnosed with rare, life-limiting, and complex…
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Little Miss Hannah Continues to Impact the Rare Disease Community
Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond Getting a diagnosis is just the first of many challenges patients with rare diseases – and their caregivers – face. “We went through a number of specialists until we found a team that finally looked at my daughter, Hannah, as…
Join us for Little Miss Hannah Night at the Las Vegas 51s Baseball Game
Join us on June 15th at Cashman Field for the Little Miss Hannah Foundation night with the Las Vegas 51s Triple-AAA baseball team! Saturday June 15th at 7:05pm Tickets: $10 each (click to buy) Price includes: * Reserved seating ticket ($11 value) * 51s baseball hat ($18 value) * Admission to the Kid’s Carnival …
Medical and Therapy Equipment Grant Recipients Chosen
Our grant recipients for our first round of Medical and Therapy Equipment Grants have been chosen. Grant applicants will be notified of their status on Monday, March 25th. Unfortunately, the number of grant requests we received outnumbered the amount of grants we could fulfill at this time, so those that were not chosen will automatically…
Little Miss Hannah Foundation joins Rare Disease Lobby Day to Advocate for Childhood Rare Disease Awareness and Funding
On Tuesday, February 27, 2013, our Little Miss Hannah Foundation joined a group of 150 patient and parent advocates of rare disease awareness marched on Capitol Hill to meet with legislators. The event was organized by the Rare Disease Legislative Advocates and meetings with representatives from 45 states were arranged. Our first goal was to make…