Meet adorable 3-year-old Eva whose sweet smile and infectious personality just warmed our heart when we met her to deliver special needs tricycle. This bike will Eva an opportunity to be able to participate in more activities with her family! To help us provide kids like Eva the equipment they need, please go tohttp://www.littlemisshannah.org/donate
We had a wonderful time tonight volunteering with some of our carnival games at our local children’s hospital pediatric holiday party. Thank you St. Rose Dominican Hospitals – Siena Campus for including us!
Happy Tears today following the overwhelmingly positive vote in the Senate today for 21st Century Cures! Our family has worked with hundreds of rare disease advocates all over the U.S. to create HOPE for our rare disease community. Thank you U.S. Senator Dean Heller and Senator Harry Reid for putting our Nevada rare children’s needs…
We attended the Genetic, Rare, and Immune Disorders Symposium in Fairfax, Virginia, last weekend. Carrie, Hannah’s mom, was a speaker discussing the importance for families to get involved in advocacy for their rare disease communities. Robert, Hannah’s Dad, met with researchers and scientists to learn the latest advancements in rare disease treatments.
#GivingTuesday – November 29th! Help us give the gift of *hope* for hundreds of kids diagnosed with rare, life-limiting, and complex medical conditions at https://givingtuesday.razoo.com/us/story/Little-Miss-Hannah-Foundation