Coming off knee surgery in 2009, 51s catcher Landon Powell was working out when he collapsed and went into convulsions. Rushed to a hospital, Powell was diagnosed with autoimmune hepatitis, a rare disease that might eventually require him to undergo a life-saving liver transplant. Despite having to take medication that caused performance-sapping side effects, Powell…
Latest News
Little Miss Hannah Continues to Impact the Rare Disease Community
Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond Getting a diagnosis is just the first of many challenges patients with rare diseases – and their caregivers – face. “We went through a number of specialists until we found a team that finally looked at my daughter, Hannah, as…
‘Jersey Boy’ Jeff Leibow takes NF fight to Washington
In “Jersey Boys,” Jeff Leibow shows his strength of voice several nights a week. Offstage, he’s showing his inner strength in the fight against the disorder that has affected his daughter. Leibow, who portrays Nick Massi in the Paris Las Vegas production, remains resolute in the fight against Neurofibromatosis, the disease from which his 3…
Join us for Little Miss Hannah Night at the Las Vegas 51s Baseball Game
Join us on June 15th at Cashman Field for the Little Miss Hannah Foundation night with the Las Vegas 51s Triple-AAA baseball team! Saturday June 15th at 7:05pm Tickets: $10 each (click to buy) Price includes: * Reserved seating ticket ($11 value) * 51s baseball hat ($18 value) * Admission to the Kid’s Carnival …
Medical and Therapy Equipment Grant Recipients Chosen
Our grant recipients for our first round of Medical and Therapy Equipment Grants have been chosen. Grant applicants will be notified of their status on Monday, March 25th. Unfortunately, the number of grant requests we received outnumbered the amount of grants we could fulfill at this time, so those that were not chosen will automatically…