REPOST: A Medical Adviser to the National Organization for Rare Disorders (NORD) Responds to this Question WASHINGTON DC, Oct. 3, 2012—-Can our society afford to provide costly medical care for patients with rare diseases, or would that money better be spent on treatments for more common conditions affecting larger numbers of people? That…
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Little Miss Hannah Foundation receives Genzyme’s Patient Advocacy Leader award
The Little Miss Hannah Foundation was awarded the Genzyme Patient Advocacy Leader 2012 Award for our school-involved World Rare Disease Day program! We were only one of 9 organizations world-wide to receive this honor along with a grant to help us expand our program. We are very proud to receive this award for our Little…
Resource Friday: Maximum Hope Foundation
Maximum Hope Foundation, created by actor/comedian Brad Garrett. It is their belief that no family should have to choose between paying their bills and attending to their son or daughter as he or she battles to survive. Many parents lose income or employment as a result of taking time off to care for their little one,…
Letting Children Share in Grief
Repost from the New York Times, written by Catherine Saint Louis A FEW decades ago, children often didn’t attend funerals. The thinking was that they should be sheltered from the pain of losing a loved one. And as Americans started living longer, the need to even broach the subject of death was delayed because…
Resource Friday: Computers for Kids, Nevada
Each Friday we will share information about one of the listings in our Little Miss Hannah Resource and Service Directory. Computers for Kids, Inc. Mission: Offer students K – 14th grade the opportunity to enhance their education through the use of technology at home. Computers for Kids, Inc. (CFK) is a non-profit 501(C)(3) organization formed in 2002…