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Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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Latest News

January 30, 2018 by Carrie Ostrea

Article: Steps to Take After Receiving a Rare Diagnosis

As a rare parent advocate, one of the questions I get asked most by newly diagnosed families is “What do I do next? How will I manage this?” My good friend and colleague, Anne Bruns, and I co-authored this article for Exceptional Parents Magazine’s annual “Navigating Special Needs Resources” magazine tackling just this topic.   Click…

Filed Under: Blog, LMHF News Tagged With: author, Carrie Ostrea, Exceptional Parent Magazine, rare disease, special needs

December 17, 2017 by Carrie Ostrea

Thank You Southern Nevada Golf Association of Business Women

Thank you to the wonderfully supportive women of the Southern Nevada Golf Association for Business Women for choosing our Little Miss Hannah Foundation as their recipient for their Holiday Golf tournament for the third year in a row! Because of their generosity, we will be able to provide even more equipment to families of rare and medically…

Filed Under: Blog, LMHF News Tagged With: Jingle Balls Invitational, Southern Nevada Golf Association for Business Women

November 16, 2017 by Carrie Ostrea

Acts of Kindness Followup Segment on CBS 8

8 News Now Las Vegas awarded the LMHF founders, Robert and Carrie Ostrea with our Acts of Kindness this past summer and recently popped back in to see what we were up to. Click here to view the video

Filed Under: Blog, LMHF News Tagged With: Acts of Kindness Award, CBS 8, Kirsten Joyce, media, video

May 25, 2017 by Carrie Ostrea

LMHF Founders Awarded Las Vegas Acts of Kindness Award

Carrie and Robert Ostrea, founders of the Little Miss Hannah Foundation, were presented with an amazing gift today from our local 8 News Now CBS station. It was a great surprise and a wonderful opportunity to share our passion for our rare and medically complex kids here in Las Vegas. Kirsten Joyce, the reporter that…

Filed Under: Blog, LMHF News, Media Tagged With: Acts of Kindness Award, CBS 8, Kirsten Joyce

May 23, 2017 by Carrie Ostrea

Thank you Henri Termeer

It seems that almost everyone in the rare disease community has a personal story about Henri Termeer. Here is mine — A few years ago at the Global Genes gala, my husband (Robert Ostrea, MBA) and I were seated at Henri Termeer’s table because of our connection to the Gaucher community. I will admit being…

Filed Under: Blog, LMHF News Tagged With: Gaucher Disease, Genzyme, Global Genes, Henri Termeer

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Vegas Cares About Rare Kids 5K
February 28, 2021

 

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Medical and Therapy Equipment Grant Program

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10624 S. Eastern Avenue, Suite A-847
Henderson, NV 89052
Phone: (702) 608-2488
Fax: (702) 541-9957

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Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921