As a rare parent advocate, one of the questions I get asked most by newly diagnosed families is “What do I do next? How will I manage this?” My good friend and colleague, Anne Bruns, and I co-authored this article for Exceptional Parents Magazine’s annual “Navigating Special Needs Resources” magazine tackling just this topic. Click…
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Thank You Southern Nevada Golf Association of Business Women
Thank you to the wonderfully supportive women of the Southern Nevada Golf Association for Business Women for choosing our Little Miss Hannah Foundation as their recipient for their Holiday Golf tournament for the third year in a row! Because of their generosity, we will be able to provide even more equipment to families of rare and medically…
Acts of Kindness Followup Segment on CBS 8
8 News Now Las Vegas awarded the LMHF founders, Robert and Carrie Ostrea with our Acts of Kindness this past summer and recently popped back in to see what we were up to. Click here to view the video
LMHF Founders Awarded Las Vegas Acts of Kindness Award
Carrie and Robert Ostrea, founders of the Little Miss Hannah Foundation, were presented with an amazing gift today from our local 8 News Now CBS station. It was a great surprise and a wonderful opportunity to share our passion for our rare and medically complex kids here in Las Vegas. Kirsten Joyce, the reporter that…
Thank you Henri Termeer
It seems that almost everyone in the rare disease community has a personal story about Henri Termeer. Here is mine — A few years ago at the Global Genes gala, my husband (Robert Ostrea, MBA) and I were seated at Henri Termeer’s table because of our connection to the Gaucher community. I will admit being…