• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar

Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

Make a Donation Volunteer Apply for Services
  • About Us
    • Our Mission
    • Meet our Team
    • Photos/Videos
      • Photos
      • Videos
    • Latest News
    • Our Impact Results
  • Hannah’s Story
  • Programs
    • Medical-Therapy Equipment Assistance Program
    • College Scholarship
    • Childhood Rare Disease Advocacy
    • Family Support and Activities
  • 2022 Tee Up FORE Rare Golf
  • 2023 Vegas Rare 5K
  • Get Help
    • Become a LMHF Family
    • Make-A-Wish Referrals
    • Resources
  • Get Involved
  • Contact us

Blog

March 5, 2017 by Carrie Ostrea

2017 Vegas Rare 5K photos are up!

Photos from our 5K event have been posted on Facebook. Tag yourself if you see yourself!   Thank you for joining us to help celebrate our local rare kids and create awareness for childhood rare diseases on World Rare Disease Day. Event photos | Step and Repeat photos Save the date for next year –…

Filed Under: Blog, LMHF News Tagged With: Las Vegas, Local Rare Kids, Vegas Cares About Rare 5K, World Rare Disease Day

February 28, 2017 by Carrie Ostrea

Today is Rare Disease Day

Today is World Rare Disease Day celebrating our Little Miss Hannah who was diagnosed with Gaucher Disease Type 2/3.  Please take a few minutes to learn why this day is so important to our rare disease  community.   

Filed Under: Blog, LMHF News Tagged With: Gaucher Disease, Hannah Ostrea, World Rare Disease Day

December 21, 2016 by Robert Ostrea

The Fight Never Ends for Rare Disease Advocates

By Robert Ostrea As an involuntary member of the rare disease community (my youngest daughter, Hannah, was diagnosed with a rare, genetic disease shortly after birth), I have been fairly active in participating in events and organizations geared towards raising awareness of as well as educating people in positions of power (elected officials) about the…

Filed Under: Blog, LMHF News Tagged With: 21st Century Cures, Advocacy, Legislation, OPEN Act, World Rare Disease Day

December 20, 2016 by Carrie Ostrea

Meet Eva, LMHF Grant Recipient

Meet adorable 3-year-old Eva whose sweet smile and infectious personality just warmed our heart when we met her to deliver special needs tricycle. This bike will Eva an opportunity to be able to participate in more activities with her family! To help us provide kids like Eva the equipment they need, please go tohttps://www.littlemisshannah.org/donate

Filed Under: Blog, LMHF News, Local Rare Kids Tagged With: Grant Recipient, LMHF Child, Local Rare Kids

December 12, 2016 by Carrie Ostrea

Pediatric Christmas Party

We had a wonderful time tonight volunteering with some of our carnival games at our local children’s hospital pediatric holiday party. Thank you St. Rose Dominican Hospitals – Siena Campus for including us!

Filed Under: Blog, LMHF News Tagged With: community, pediatric hospital, volunteering

  • « Go to Previous Page
  • Go to page 1
  • Interim pages omitted …
  • Go to page 3
  • Go to page 4
  • Go to page 5
  • Go to page 6
  • Go to page 7
  • Interim pages omitted …
  • Go to page 22
  • Go to Next Page »

Primary Sidebar

Our Upcoming Event!


Tee Up FORE Rare 2022
 

Featured Programs


Medical and Therapy Equipment Grant Program

Site Info

  • About Us
  • Our Mission
  • Latest News
  • Hannah’s Story
  • Programs

Get Involved!

  • Become a LMHF Family
  • Upcoming Events
  • Donate
  • Volunteer
  • Rare Disease Advocacy

Contact Us

10624 S. Eastern Avenue, Suite A-847
Henderson, NV 89052
Phone: (702) 608-2488
Fax: (702) 541-9957

Privacy Policy

Connect With Us

  • Email
  • Facebook
  • Instagram
  • Twitter

Copyright © 2023· Little Miss Hannah Foundation · Site By New Wave Media Design
Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921