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Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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Front

October 11, 2012 by Carrie Ostrea

“Sequestration” and its Drastic Effects for Rare Disease

Sequestration is a term to describe the massive across-the-board cuts that the federal government will impose on all non-defense spending starting in January 2013 if Congress does not act to stop it. This was a result of both parties not agreeing on a plan to cut the federal deficit. What does this mean for those of…

Filed Under: Blog, Front Tagged With: Legislation

October 8, 2012 by Carrie Ostrea

‘Disease Adovcacy’ Has Changed How Medical Research Is Funded

Repost from CBS Detroit ANN ARBOR — Patient-led advocacy has created a shift in the way the United States government prioritizes funding for medical research and has significantly changed the way policymakers think about who benefits the most from these dollars, says a public health researcher at the University of Michigan. In “Disease Politics and…

Filed Under: Blog, Front Tagged With: Rare Disease News

August 13, 2012 by Carrie Ostrea

Meet Jobyna

Jobyna Casey is a beautiful and spunky 4-year-old girl who lives in Las Vegas.    She is Hannah’s friend, Hannah’s first playdate.   Her mother and I got along so well because we were both determined “Moms on a Mission” to do whatever we could for our daughters.  Her father also works tirelessly to help…

Filed Under: Blog, Front, Local Rare Kids Tagged With: Local Rare Kids

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10624 S. Eastern Avenue, Suite A-847
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Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921