Reposted from Talking Points Memo. Written by Carl Franzen. Crowdfunding, or fundraising over the Web by soliciting a mass of donors, is good for more than just financing pet projects like music albums and iPhone accessories. Just ask the Nieders: The New York family of three (and one dog, Parker) have been searching for answers to…
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Rare Disease Middle School Education Program
To expand awareness of the rare disease process to our children, the National Institutes of Health has created a program to teach our 6th – 8th graders how rare diseases occur and how treatments could be pursued. This is so incredibly important, as it is this generation that will likely be working on cures and…
Meet Jobyna
Jobyna Casey is a beautiful and spunky 4-year-old girl who lives in Las Vegas. She is Hannah’s friend, Hannah’s first playdate. Her mother and I got along so well because we were both determined “Moms on a Mission” to do whatever we could for our daughters. Her father also works tirelessly to help…
Meet Five Local Healthcare Heroes…
Reprinted from The Desert Companion The mentor: Dr. Jonathan Bernstein Pediatric hematologist/oncologist Caring about kids is in Jonathan Bernstein’s blood — in an odd, literal way, in fact. He remembers his father, a pediatric orthopedic surgeon, teaching him and his brother and sister how to draw blood when they were as young as 10 or…
Preparing for World Rare Disease Day 2013
On February 22nd, the Little Miss Hannah Foundation will be working with students in the Henderson area on our THIRD World Rare Disease Day awareness campaign – Jeans for Genes day! For the past two years, Vanderburg Elementary has led the way by hosting this wonderful event with their students and staff. This year,…