Family Activities

For thirteen years, we’ve watched something extraordinary unfold in Southern Nevada – a community where families facing rare diseases and complex medical conditions found understanding, friendship, and hope in each other.

Because of Hannah’s journey with Gaucher’s Disease Type 2, we understood firsthand the isolation and challenges families face. Her legacy inspired us to create the support network we wished we’d had – one that has now touched hundreds of lives across Southern Nevada. We’re grateful to every family, volunteer, and supporter who helped build this community.

We’ve seen lasting friendships form over coffee chats and bowling nights. We’ve witnessed siblings finding comfort in others who understand their unique journey. We’ve celebrated victories at Vegas Golden Knights games, shared stories at SeaQuest adventures, and created precious memories at holiday gatherings.

One of our proudest achievements was the Vegas Cares About Rare Kids 5K, where for eight years, our LMHF children were the true VIPs. This signature event brought hundreds of community members together to celebrate these remarkable kids for who they are, not their diagnoses. Watching our LMHF families connect with each other and seeing the community rally around them was truly special.

Through these connections, hundreds of local families found they weren’t alone. Parents who once felt isolated discovered others who truly understood their challenges. Children with rare diseases met others like them, often for the first time. These bonds – formed over shared experiences, challenges, and triumphs – will continue long after our foundation concludes its work at the end of 2025.

While we won’t be hosting events in 2025, our private Facebook group remains active through year-end, allowing these meaningful connections to continue.

We are filled with gratitude for every family who shared their journey with us.