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Vegas Cares About Rare 5K

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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About LMHF : Vegas Cares About Rare 5k

Abigail, Hannah, and Ethan Ostrea

We get asked often how the Little Miss Hannah Foundation came to be by those who are just learning about us.

We are a Las Vegas based, family-run nonprofit organization that was started in memory of our daughter, Hannah. During Hannah’s life, there were many things that our family needed to help us manage Hannah’s care and enhance her quality of life. Because her disease was so rare, there were very few services available to us.

After she passed away at the age of 3 years 4 months in December 2011, our family decided that we would create an organization that would directly help other local rare and medically complex families by supplying the equipment and services we were so desperately in need of during Hannah’s life.

Our organization staff is completely volunteer-based and made up of some amazing family and friends who loved Hannah and believe that children like her deserve so much love and support.

This organization is not only dedicated to Hannah’s memory and legacy, but it was created in honor of our two other children (Ethan and Abigail) who were Hannah’s best friends, junior nurses, and the ones who were able to get Hannah to smile the biggest.

 

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Rare diseases are responsible for 35% of deaths in the first year of life
Little Miss Hannah Foundation
2016-11-18T20:30:03+00:00
Rare diseases are responsible for 35% of deaths in the first year of life
https://littlemisshannah.org/testimonials/3941/
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10624 S. Eastern Avenue, Suite A-847
Henderson, NV 89052
Phone: (702) 608-2488
Fax: (702) 541-9957

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Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921