Thank you to the Children’s Specialty Center of Nevada and the Las Vegas Metropolitan Police Department for a wonderful event that gave us the opportunity to share the need for childhood rare disease awareness and meet some incredible families!
We had over 2 dozen messages of “hope” created and added to our 6-foot tall blue “genes” denim ribbon! We also handed out over 100 ribbons and many of those who came to the event wore them with pride. It was wonderful to see so many people in our community, especially those in law enforcement, believe so strongly in the need for creating awareness for our rare kids.
