Our programs are created to support families with a child under 18 years old, living at home or medical care facility in Southern Nevada, meeting at least one of the following criteria:
* Diagnosed with a rare, life-limiting disease with an average prognosis of less than 20 years of age
* Currently placed in hospice care or is on palliative care due to an untreatable life-limiting condition
* Undiagnosed with severe complex needs, considered medically fragile
* Diagnosed with a debilitating neurologic, metabolic, or genetic medical condition
Click here to register for support
Family Support and Activities
We provide support for all members of the family by providing family-focused and sibling-focused groups and activities including tickets to free local Las Vegas shows and sporting events, attractions, and get-togethers. Recent activities have included:
- Vegas Golden Knights hockey games
- Halloween party
- Mom’s Night Out
- Free movie screenings
- Las Vegas 51s tickets
- Jeff Civilico show at the Linq
- Hospital PICU Care Bags
- Rainbows in the Wind Festival
Rare and Undiagnosed Disease Support
Support and help to find the resources families need to help manage their child’s care. This could be in the form of seeking out financial assistance (federal, local, or grant), research assistance (learning more about the disease process, future treatment possibilities, or researchers to contact), support groups (local workshops and groups, national/state foundations, etc.). They will also be connected to other LMHF families so they may share experiences and references, vent their frustrations, and not feel alone in their journey.