Our Team

Carrie Ostrea is the co-founder and board chairperson of the Little Miss Hannah Foundation, created to honor her daughter, Hannah, who lost her battle to Gaucher Type 2/3. As a “dragon mom” and former Executive Director, Carrie is passionate about supporting families with children facing rare and medically complex conditions. Through the foundation, Carrie provides essential resources and care to enhance the quality of life for these families. With extensive experience working with over 400 rare disease nonprofits, she offers expert guidance in nonprofit management and patient program development. Carrie holds an MBA in Healthcare Management from Western Governors University. She shares a love for Disney, the Los Angeles Dodgers, and the Vegas Golden Knights with her husband and kids, Ethan (23) and Abigail (20).

Robert Ostrea is a co-founder of the Little Miss Hannah Foundation. Robert is Dad to Ethan (23), Abigail (20) and Hannah, who lost her battle to Neuronopathic Gaucher’s Disease at the age of 3. Robert has been involved in business development and promoting higher education for over twenty years, working primarily with adult professionals in business, teacher education, information technology and healthcare. Influenced by his personal experience caring for Hannah coupled with his desire to be more effective in advancing the mission of the Little Miss Hannah Foundation, Robert pursued and completed an MBA with an emphasis in Healthcare Management and an MPA with an emphasis in Government in Policy. Robert lives with his wife Carrie and their children in Henderson, NV and continues to be a parent advocate of childhood rare disease and special needs issues.

A child must know that they are a miracle, that since the beginning of the world there hasn’t been, and until the end of the world there will never be, another child like them. This is a saying that hangs on the wall in my office and it is something I think about every day. Working with the Little Miss Hannah Foundation allows me a chance to make all the children involved in this wonderful organization feel this way!

Abigail Ostrea, Little Miss Hannah’s big sister, has spent her life understanding the struggles of having a sibling with rare disease challenges. Watching her sister, Hannah, face these hardships has inspired Abigail to support families within the rare disease community.

As a Community Engagement Manager, Abigail blends her personal experiences with her professional skills to make a real difference. She’s great at connecting people, building strong support networks, and creating programs that meet the unique needs of rare disease families. With her compassionate and dedicated approach, Abigail is a true advocate, committed to helping and uplifting the community every step of the way.

Faatimah Patterson is a board-certified and licensed speech language pathologist who is dedicated to helping others, from birth to geriatrics, have access to resources to help enhance their quality of life through increasing safe oral intake, effective cognitive communication skills, addressing the need for the population to have access to handicap accessible events, and the obtainment and use of durable medical equipment.

Faatimah’s has a passion for advocating for an increase in social, life skills, and habilitation/rehabilitation for our medical population. She serves as an expert on the matter of advanced alternative and/or augmentative communication, neurocognitive training, traumatic brain injury, interpersonal education, etc. Faatimah looks forward to addressing your needs and providing you with services for our most precious medically fragile community in Las Vegas, Nevada.

Angela Berg DNP, APRN, CPNP has been proudly advocating for and serving the needs of medically complex children and their families in Nevada since 2001. Angela teamed up with Dr Kathleen Gates to start the first pediatric hospice program in the state of Nevada in 2007 and went on to complete her doctorate and start the first clinic based pediatric palliative care program in 2016. She continues to be a fierce advocate for the medically complex children in Nevada advocating for education, program development, and access to care.

Beth Aselage has been a life-long advocate for the rare disease community, personally growing up with three family members affected by a rare genetic disease. Witnessing firsthand the struggles faced by many rare families, Beth has volunteered and collaborated with dozens of different rare disease organizations over just the past few years. First introduced to the LMHF and Carrie Ostrea, Little Miss Hannah Foundation’s Executive Director & Co-Founder, Beth was immediately inspired by the mission of the organization and the dedication of its leadership to supporting the rare disease community. A Senior Patient Advocacy & Alliance Management Specialist at Retrophin, Inc., a small biotech company focused on developing new therapies for patients suffering from rare diseases, Beth remains committed to helping support rare families and joins the LMHF as a proud rare disease advocate and Board Member.

Leah Abbs has over 20 years of Event Planning experience and has used those skills along with her passion for helping others, in volunteering for numerous nonprofit organizations between Las Vegas and SoCal. LMHF is very near and dear to her heart because her daughter, who is one of the LMHF kiddos. Leah first became involved with LMHF as a volunteer back in 2014 for the Rainbows in the Wind Event. From that point on, it’s been her mission to bring awareness of the organization to the community, organizing fundraisers as well as leading fundraisers within the Hotels on the Strip that she has been employed with.