- (702) 608-2488
- families@littlemisshannah.org
Home | About us
When families in Southern Nevada learn their child has a rare disease or complex medical condition, they need support, resources, and community. We know this firsthand – it’s why our family created the Little Miss Hannah Foundation.
Our daughter Hannah inspired this foundation. When she was diagnosed with an ultra-rare genetic condition, we lived through the many challenges families face – from navigating complex medical care to fighting insurance denials for essential equipment. Each piece of equipment insurance wouldn’t cover added another financial burden during an already overwhelming time. After Hannah passed away at age three in 2011, we committed to helping other local families access the support we had found so hard to find.
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Since 2019, the Little Miss Hannah Foundation has significantly amplified its impact. We’ve raised over $170,000 to support local families, enabling us to purchase more than 150 pieces of medical and therapy equipment—including special needs chairs, car seats, therapy tools, bathing chairs, feeding chairs, tricycles, and strollers. Our efforts have reached over 250 families with children diagnosed with more than 135 rare diseases. In 2019, our third annual Vegas Cares About Rare Kids 5K event attracted over 500 participants, with 21 rare kids honored as VIPs. We’ve hosted cherished events like our annual LMHF Halloween Party, SeaQuest Adventure, and LMHF Night with the Vegas Golden Knights, bringing joy to the families we serve. Additionally, we’ve actively participated in advocacy initiatives such as Rare Disease Day in Washington D.C., the Nevada Disabilities Conference, and the RARE Patient Advocacy Summit, reinforcing our commitment to the rare disease community.
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We are an all-volunteer organization of families who have walked this path. Every person involved with LMHF understands the journey because we’ve lived it.
