Our programs are created to support families with a child under 18 years old, living at home or medical care facility, meeting at least one of the following criteria:
* Diagnosed with a rare, life-limiting disease with an average prognosis of less than 20 years of age
* Currently placed in hospice care or is on palliative care due to an life-limiting condition
* Undiagnosed with severe complex needs, considered medically fragile
* Diagnosed with a debilitating neurologic, metabolic, or genetic medical condition
We currently service the Las Vegas and Southern Nevada areas. (Click here to register)
Medical and Therapy Equipment Grant Program
The Little Miss Hannah Foundation provides grants and other financial support to offset costs of medical and therapy equipment and related costs to enhance the quality of life of medically fragile and special-needs children and their families throughout Southern Nevada. Learn more about this program.
Childhood Rare Disease Advocacy
We are partnering with Global Genes – Allies in Rare Disease, one of the leading rare and genetic disease patient advocacy organizations in the world, to bring awareness and promote legislation to find treatments for the thousands of rare diseases that affect children. One of our most popular events, our World Rare Disease Day Jeans for Genes school event, was created to promote awareness within our community and to bring to light the devastating affects rare diseases have on children. Learn more about this program.
Family Support and Activities
Support and help to find the resources families need to help manage their child’s care. This could be in the form of seeking out financial assistance (federal, local, or grant), research assistance (learning more about the disease process, future treatment possibilities, or researchers to contact), support groups (local workshops and groups, national/state foundations, etc.). They will also be connected to other LMHF families so they may share experiences and references, vent their frustrations, and not feel alone in their journey.