For siblings affected by childhood rare disease
The Hannah Ostrea Memorial College Scholarship was created to honor the memory of Little Miss Hannah Ostrea, who lost her battle with an ultra-rare genetic disorder, Gaucher Disease type 2/3, at the age of 3. She lived for only three short years, yet her beautiful smile, intoxicating charm, and her courageous fighting spirit forever captured the hearts of everyone who had the opportunity to get to know her. Even though she was never able to speak a word, her expressions, her laughs, and her eyes could speak volumes.
Hannah’s best friends were her brother and sister, Ethan and Abigail. Although just a few years older than her, they brought so much joy and happiness to her life while helping care for her needs. Growing up with a medically complex sibling had its challenges, but their love for their little sister was beyond compare.
It is because of the love of Hannah’s brother and sister that the Little Miss Hannah Foundation is offering this scholarship opportunity to siblings of children diagnosed with rare disorders.
Each year, two students will receive a $1000 scholarship based on their submitted essay, scholastic achievement and community service. The scholarship checks will be presented at our 2019 Vegas Cares About Rare Kids 5K event in special recognition of World Rare Disease Day on February 2, 2019.
Application period – July 25, 2018, to November 22, 2018.
- July 25, 2018 – Scholarship opens for applications
- November 15, 2018 – Scholarship closes
- December 1, 2018 – Finalists notified
- December 22, 2018 – Finalists must have all requirements submitted
- January 8, 2019 – Winners notified
- February 2, 2019 – Winners awarded in person at Vegas Cares About Rare Kids 5K event (Las Vegas)
- Sibling of a patient diagnosed with a medically complex rare disease (living or deceased). Age at the time of diagnosis for the affected child must be 17 years or less.
- Rare disease must be listed here or a documented undiagnosed condition (significant cerebral palsy and epilepsy/seizure disorders of unknown origin are considered undiagnosed)
- Applicant must reside in or have graduated from high-school in Clark, Lincoln, or Nye county
- Be enrolled or have acceptance for an accredited two- or four-year college degree program.
- U.S. Citizen or a permanent legal resident
- G.P.A. of 2.5 or higher
- Must not have been awarded this scholarship in the past