• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar

Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

Make a Donation Volunteer Apply for Services
  • About Us
    • Our Mission
    • Meet our Team
    • Photos/Videos
      • Photos
      • Videos
    • Latest News
    • Our Impact Results
  • Hannah’s Story
  • Programs
    • Medical-Therapy Equipment Assistance Program
    • College Scholarship
    • Childhood Rare Disease Advocacy
    • Family Support and Activities
  • 2022 Tee Up FORE Rare Golf
  • 2023 Vegas Rare 5K
  • Get Help
    • Become a LMHF Family
    • Make-A-Wish Referrals
    • Resources
  • Get Involved
  • Contact us

February 25, 2012 by Carrie Ostrea

Vanderburg Elementary’s Second Annual WRDDay Event

Ms. Lueck's 4th grade class showing off their personalized cards and jeans ribbons with Carrie Ostrea, co-founder of the Little Miss Hannah Foundation

On February 24, 2012, Vanderburg Elementary School celebrated World Rare Disease Day by participating in Jeans for Genes day.   The kids and staff were encouraged to forgo school uniforms and wear jeans that day as well as their “Be Kind” shirts (Josh Stevens Foundation), and it was amazing to see such a beautiful sea of denim throughout the school!

Over 800 students created jeans ribbons and personalized cards of hope to be shared with families with children fighting rare diseases.    In addition, the higher grade classrooms were asked to write their reflections of why it is important for rare disease awareness, the symbolism of what jeans ribbons mean, as well as how they think they would feel if they had a family member affected by a rare disease..

The cards that were shared were so touching, sweet, and most of all, they came from hearts of these children.   These cards are going to be shared with our childhood rare disease families here in Vegas through Cure 4 the Kids as well as be sent nationwide to other families through the Global Genes Project.

Thank you to Ms. Maggiore, the principal at Vanderburg, for making this an annual event!  The amount of time and resources she has allowed us for this day is incredible, and it shows that she truly believes in the need of rare disease awareness in our community.   We can’t wait for next year – our THIRD year!

To see our photo gallery from this year’s event, please click here.

Filed Under: Blog, LMHF News Tagged With: Jeans for Genes Day

Primary Sidebar

Our Upcoming Event!


Tee Up FORE Rare 2022
 

Featured Programs


Medical and Therapy Equipment Grant Program

Site Info

  • About Us
  • Our Mission
  • Latest News
  • Hannah’s Story
  • Programs

Get Involved!

  • Become a LMHF Family
  • Upcoming Events
  • Donate
  • Volunteer
  • Rare Disease Advocacy

Contact Us

10624 S. Eastern Avenue, Suite A-847
Henderson, NV 89052
Phone: (702) 608-2488
Fax: (702) 541-9957

Privacy Policy

Connect With Us

  • Email
  • Facebook
  • Instagram
  • Twitter

Copyright © 2023· Little Miss Hannah Foundation · Site By New Wave Media Design
Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921