On September 11, 2021, 80 golfers came together at Painted Desert Golf Club for our Inaugural Golf Fundraiser. The goal of this event was to raise awareness of children with rare diseases. As golfers played their way through the course, they had the opportunity to learn about 18 wonderful local LMHF kids (our VIPs) as…
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Meet Jenny Krshul, our New Executive Director!
Our team is growing! Meet our new Executive Director, Jenny Krshul. “My journey in the rare disease world started in 2013 when my son was born. I strive every day to make this world a better place for my son and kids like him. I am the voice of my child and I will never…
Thank you Chuck and Judy Goodman!
Meet Chuck and Judy Lustig Goodman. Chuck just turned 60 and did something no one has ever done for us before: He asked his friends to donate to our organization as his gift! He presented us with over $1000 from his generous friends. It’s amazing what people will do for people they love. Happy Birthday, Chuck,…
Our Little Miss Hannah team is growing!
Our Little Miss Hannah team is growing by leaps and bounds! We are excited and humbled by the incredible talent, skills, and experience our growing board of directors and key volunteers are bringing to our organization. Earlier this year, we had a full-day intensive strategic planning meeting on how we can continue to improve…
2018 Essay Scholarship Winner – Griffin Becker
Written by Griffin Becker, 2018 Awardee of the Hannah Ostrea Memorial College Scholarship for siblings affected by childhood rare disease. When my sister was first diagnosed nearly a decade ago, there was virtually no support in Southern Nevada. There wasn’t even a pediatric rheumatologist in town to treat her. I think connecting parents, children, health care providers, advocates,…