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Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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Blog

September 17, 2021 by Carrie Ostrea

Our 1st annual Tee up FORE Rare was a great success!

REGISTER FOR 2022! On September 11, 2021, 80 golfers came together at Painted Desert Golf Club for our Inaugural Golf Fundraiser. The goal of this event was to raise awareness of children with rare diseases.  As golfers played their way through the course, they had the opportunity to learn about 18 wonderful local LMHF kids…

Filed Under: Blog, LMHF News Tagged With: Community Event, Fundraising, Golf, Tee up FORE Rare

June 29, 2021 by Carrie Ostrea

Meet Jenny Krshul, our New Executive Director!

Jenny Krshul - Executive Director

Our team is growing! Meet our new Executive Director, Jenny Krshul. “My journey in the rare disease world started in 2013 when my son was born. I strive every day to make this world a better place for my son and kids like him. I am the voice of my child and I will never…

Filed Under: Blog, LMHF News

July 7, 2019 by Carrie Ostrea

Thank you Chuck and Judy Goodman!

Meet Chuck and Judy Lustig Goodman. Chuck just turned 60 and did something no one has ever done for us before: He asked his friends to donate to our organization as his gift! He presented us with over $1000 from his generous friends. It’s amazing what people will do for people they love. Happy Birthday, Chuck,…

Filed Under: Blog, LMHF News Tagged With: Chuck Goodman, Donors, Judy Goodman, Thanks!

July 7, 2018 by Carrie Ostrea

Our Little Miss Hannah team is growing!

  Our Little Miss Hannah team is growing by leaps and bounds! We are excited and humbled by the incredible talent, skills, and experience our growing board of directors and key volunteers are bringing to our organization. Earlier this year, we had a full-day intensive strategic planning meeting on how we can continue to improve…

Filed Under: Blog, LMHF News Tagged With: LMHF team, Programs

May 25, 2018 by Carrie Ostrea

2018 Essay Scholarship Winner – Griffin Becker

Written by Griffin Becker, 2018 Awardee of the Hannah Ostrea Memorial College Scholarship for siblings affected by childhood rare disease. When my sister was first diagnosed nearly a decade ago, there was virtually no support in Southern Nevada. There wasn’t even a pediatric rheumatologist in town to treat her. I think connecting parents, children, health care providers, advocates,…

Filed Under: Blog, LMHF News Tagged With: 2018 Scholarship Recipient, Griffin Becker, Hannah Ostrea Memorial College Scholarship, Jenna Becker, Juvenile Rheumatoid Arthritis

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10624 S. Eastern Avenue, Suite A-847
Henderson, NV 89052
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Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921