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Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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September 17, 2021 by Carrie Ostrea

Our 1st annual Tee up FORE Rare was a great success!

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On September 11, 2021, 80 golfers came together at Painted Desert Golf Club for our Inaugural Golf Fundraiser. The goal of this event was to raise awareness of children with rare diseases.  As golfers played their way through the course, they had the opportunity to learn about 18 wonderful local LMHF kids (our VIPs) as well as rare disease facts. Each tee box had a poster of a VIP child that contained their photo, name, diagnosis, and some fun facts about them.  Many golfers said they were moved to tears as they learned about the amazing children of our organization. Golfers, who also happened to be parents of our VIP kids, would often stop for a photo opp in front of their child’s VIP sign on the tee box. The overwhelming feeling of support was felt throughout the course!

After everyone finished their 18 holes, golfers were invited back to the clubhouse to see who the raffle prize winners were and to have lunch. It was extremely moving to look around the clubhouse, and see that every table was filled, as well as people standing at the bar….and to know that every single person was there to support children with rare diseases. As I walked throughout the clubhouse and chatted with different people about the organization, I kept becoming overwhelmed with emotion. The feeling of this event was absolutely priceless, and I am truly speechless at the turnout and success. I am so proud of our community for the support!!!

This year’s event statistics:

  • 80 Golfers
  • 18 VIP kids represented with signs on the tee boxes
  • 20 hole sponsors
  • $1,803 raised in raffle tickets
  • $3,960 raised by golfer registration
  • $1,000 raised in food/beverage
  • $11,600 raised in donations & hole sponsorships

TOTAL  FUNDS RAISED: $18,363.00

Special thank you to our inaugural sponsors!

  • Alliance Framing Systems
  • Assurance, LTD (www.assuranceltd.com)
  • Dare to Dream Events (www.daretodreameventslv.com)
  • Dene & Janis Krametbauer
  • Drs. Paul & Susan Michael
  • Findlay Chevy Auto Parts
  • KTNV Channel 13 (www.ktnv.com)
  • Mountain Vista Development, Inc. 
  • Pro Backflow 
  • R&K Concrete Cutting 
  • Robco Electric (www.robcoelectriclv.com)
  • Sir Jason Winters Products (www.sirjasonwinters.com)
  • Teachable Kids (www.teachablekids.com)
  • Therapy Dog Boro Bear
  • The Ashley Family
  • The Kohr Family
  • The Press Box (https://lvsportsnetwork.com/the-press-box-2/)
  • Vegas Valley Fleet & Auto (www.vvfashop.com)
  • VTN (www.vtnnv.com)

Check out this year’s photos (155)!

Filed Under: Blog, LMHF News Tagged With: Community Event, Fundraising, Golf, Tee up FORE Rare

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Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921