Our team is growing! Meet our new Executive Director, Jenny Krshul.
“My journey in the rare disease world started in 2013 when my son was born. I strive every day to make this world a better place for my son and kids like him. I am the voice of my child and I will never give up hope! I know the feeling of being isolated and helpless. I want to connect with other families to show them that they’re not alone. Navigating through the special needs world alone is tremendously hard; having the support and friendship of other families who “get it” is priceless. Advocating for the special needs community has truly become my passion in life. I thank my son every day for the lessons that I’ve learned being a special needs mother.”
Jenny was previously the Little Miss Hannah Foundation’s Family Outreach Coordinator and member of the Board of Directors. She will be stepping into the role previously held by Carrie Ostrea, Little Miss Hannah’s mom, since the organization’s inception in 2011.
Carrie states, “This organization been an absolute labor of love since Hannah passed away in December 2011. We have accomplished so much in the first 10 years thanks to the amazing support of family, friends, and our Board of Directors. Although I am stepping back from the day-to-day work of the organization, Robert and I will still take on active roles as we have grown to care for so many of our LMHF kids and families we have met over the past decade. This transition bringing Jenny on as Executive Director will bring new energy to our organization, as she has so many new ideas that we know these next 10 years are going to be even more impactful to our local children with rare, life-limiting and complex medical conditions. “
Carrie will be transitioning to the Chairperson of the LMHF Board of Directors and will continue to actively participate in the organization along with Robert Ostrea, who will remain as President of the organization.