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Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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November 21, 2016 by Carrie Ostrea

Genetic, Rare, and Immune Disorders Symposium

grids-symposium-gaucher-diseaseWe attended the Genetic, Rare, and Immune Disorders Symposium in Fairfax, Virginia, last weekend.

Carrie, Hannah’s mom, was a speaker discussing the importance for families to get involved in advocacy for their rare disease communities.    Robert, Hannah’s Dad, met with researchers and scientists to learn the latest advancements in rare disease treatments.

Filed Under: Blog, LMHF News Tagged With: Advocacy, GRIDS, rare disease, speaker

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