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Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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February 15, 2013 by Carrie Ostrea

Newborn Screening Saves Babies, Help Save Newborn Screening

Please take just a minute to sign this and help ensure the vitally important activities of SACHDNC. This is where life saving decisions about newborn screening are made. Please sign and share.

The SACHDNC is the only national venue where parents can contribute their experiences and perspectives to the public deliberations on newborn screening. In addition, the Committee needs to complete it’s deliberations on Pompe Disease so that babies lives will be saved. It is vitally important the Committee’s term be extended until Congressional reauthorization occurs. Any gap in the Committee’s activities could lead to babies’ lives in this country being needlessly lost.

Babies do not have a voice and our community needs to be their voice! Thank to everyone who has already signed!

Sign here!

Newborn Screening Saves Babies…..One Foot At A Time (ENGLISH) from Save Babies on Vimeo.

Filed Under: Blog, Front Tagged With: Education

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Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921