Please take just a minute to sign this and help ensure the vitally important activities of SACHDNC. This is where life saving decisions about newborn screening are made. Please sign and share. The SACHDNC is the only national venue where parents can contribute their experiences and perspectives to the public deliberations on newborn screening. In…
Education
Rare Disease Middle School Education Program
To expand awareness of the rare disease process to our children, the National Institutes of Health has created a program to teach our 6th – 8th graders how rare diseases occur and how treatments could be pursued. This is so incredibly important, as it is this generation that will likely be working on cures and…