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Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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November 15, 2016 by Carrie Ostrea

#CuresNOW – United Rare Disease Day of Action

curesnow-21st-century-cures

* ACTION ALERT * PICK UP THE PHONE TODAY!!
Every single person reading this can help us provide HOPE for children diagnosed with life-limiting rare diseases! #CuresNOW

Today, we are calling on patients across America to take action for a United Rare Disease Day of Action. Our goal is to ensure that Congress passes the landmark 21st Century Cures Act, which could help millions of patients by improving the discovery, development and delivery of new treatments.

CLICK HERE TO CONTACT YOUR MEMBERS OF CONGRESS

The bill contains provisions to dramatically increase funding for drug review and medical research, and will encourage industry to develop needed treatments for patients with rare diseases. But time is running out. Congress must pass this legislation this year as patients simply cannot afford another delay in life-saving treatments. Together, we must make sure 21st Century Cures becomes law.

Filed Under: Blog, LMHF News Tagged With: 21st Century Cures, Advocacy, CuresNow, Funding, Research

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