* ACTION ALERT * PICK UP THE PHONE TODAY!! Every single person reading this can help us provide HOPE for children diagnosed with life-limiting rare diseases! #CuresNOW Today, we are calling on patients across America to take action for a United Rare Disease Day of Action. Our goal is to ensure that Congress passes the…
Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.