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Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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Gaucher Disease

May 23, 2017 by Carrie Ostrea

Thank you Henri Termeer

It seems that almost everyone in the rare disease community has a personal story about Henri Termeer. Here is mine — A few years ago at the Global Genes gala, my husband (Robert Ostrea, MBA) and I were seated at Henri Termeer’s table because of our connection to the Gaucher community. I will admit being…

Filed Under: Blog, LMHF News Tagged With: Gaucher Disease, Genzyme, Global Genes, Henri Termeer

February 28, 2017 by Carrie Ostrea

Today is Rare Disease Day

Today is World Rare Disease Day celebrating our Little Miss Hannah who was diagnosed with Gaucher Disease Type 2/3.  Please take a few minutes to learn why this day is so important to our rare disease  community.   

Filed Under: Blog, LMHF News Tagged With: Gaucher Disease, Hannah Ostrea, World Rare Disease Day

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Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921