It seems that almost everyone in the rare disease community has a personal story about Henri Termeer. Here is mine — A few years ago at the Global Genes gala, my husband (Robert Ostrea, MBA) and I were seated at Henri Termeer’s table because of our connection to the Gaucher community. I will admit being…
Gaucher Disease
Today is Rare Disease Day
Today is World Rare Disease Day celebrating our Little Miss Hannah who was diagnosed with Gaucher Disease Type 2/3. Please take a few minutes to learn why this day is so important to our rare disease community.