After losing their daughter to rare disease, a Henderson family has created a foundation in her honor BY MICHAEL LYLE (original article) VIEW STAFF WRITER Posted: Jul. 10, 2012 | 12:35 a.m. Even though Hannah Ostrea died when she was 3, her family plans to make sure her name and memory live on through the Little…
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Little Miss Hannah’s Legacy Brings Awareness to Rare Disease
written by Mina Frannea, Today’s Mama Each year on Rare Disease Day, participants from around the world advocate for those who are affected by rare diseases, bringing attention to the need for improved access to treatment and for higher standards in diagnosis and care of patients. The observance of Rare Disease Day falls on the last day of…