Written by Chloe Davis, 2018 Awardee of the Hannah Ostrea Memorial College Scholarship for siblings affected by childhood rare disease. When my sister was 7 years old, she sat down one day and wrote a list she called “48 Ways to serve people, friends, and family”. This list included acts of service that Lexi saw…
Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.