By the time Texas residents Nicole and Bill Morris celebrated the birth of their fourth son, they were no strangers to childhood illnesses. Their careers – Bill as a pediatric nurse and Nicole as a special education teacher – taught them about health issues that affect kids. Things hit home, however, when at 11 days…
Social Security Administration expansion of Compassionate Allowances list
Program Provides Expedited Review for People With Severely Disabling Diseases Washington DC—–Peter L. Saltonstall, president and CEO of the National Organization for Rare Disorders (NORD), today thanked the Social Security Administration (SSA) for expanding the list of “Compassionate Allowances” to provide fast-track disability decisions to Americans with the most seriously disabling medical conditions. Saltonstall’s comment…
Sweet Lollipop Success!
This evening, representatives from the MOMS Club of Salt Lake City participated in the first ever Little Miss Hannah Foundation Lollipop Workshop! The lovely participants learned how to make, decorate, and package lollipops at home. They proceeded to make 55 delicious treats to serve as a future fundraiser for the Foundation, in the following flavors:…
Aqua Therapy
My son, Bertrand‘s first aqua therapy session was a success! Not only did he have fun and do well in the water, the results were carried forward on land the rest of the day. Aqua therapy will definitely become a part of his therapy regimen. Aqua therapy is also known as Aquatic Therapy, Pool Therapy,…
Understanding Sibling Loss
One of our biggest concerns during Hannah’s illness, especially during the last few months of her life, was how her disease and her loss of skills and interaction was affecting her older brother and sister. There were very few articles published anywhere on the internet, and the ones we found were mostly discussing sibling…