On February 22nd, the Little Miss Hannah Foundation will be working with students in the Henderson area on our THIRD World Rare Disease Day awareness campaign – Jeans for Genes day! For the past two years, Vanderburg Elementary has led the way by hosting this wonderful event with their students and staff. This year,…
Rainbows to the Sky Event recap!
(click for event program) On July 25, 2012, the Little Miss Hannah Foundation launched ourselves into the Las Vegas community with our “Rainbows to the Sky” event, our first fundraiser and community event. DJ Miguel Guidos of Soli Concepts Entertainment kept the crowd going with great music, audience participation, raffles, and the highlight of the evening…three…
Las Vegas Review Journal Article on LMHF
After losing their daughter to rare disease, a Henderson family has created a foundation in her honor BY MICHAEL LYLE (original article) VIEW STAFF WRITER Posted: Jul. 10, 2012 | 12:35 a.m. Even though Hannah Ostrea died when she was 3, her family plans to make sure her name and memory live on through the Little…
Pediatric palliative care centers growing in the United States
Reposted from CNN: CNN Editor’s note: Dr. Barbara Beach is the co-founder and director of the George Mark Children’s House. Tune into Sanjay Gupta MD at 4:30 p.m. E.T. Saturday and 7:30 a.m. E.T. Sunday to learn more about pediatric palliative care in “The Gift of Charles.” It began with Jim. He was a big-hearted, courageous young…
Bipartisan Action Offers Rare Disease Patients Hope, NORD Says
Washington DC—–Millions of Americans who have serious rare diseases and no treatment may face a brighter future as a result of a bill approved today by the U.S. Senate, according to the National Organization for Rare Disorders (NORD). “We salute the Senate for decisive and bipartisan action in approving the FDA Safety and Innovation Act…