This list will be continually updated as new articles are added. If you would like to submit an article to our blog, please contact us.
Childhood Rare Disease Advocacy
Financial and Insurance
LMHF Events and Awareness
- Little Miss Hannah Foundation receives Genzyme’s Patient Advocacy Leader award
- Preparing for World Rare Disease Day 2013
- Rainbows to the Sky Event recap!
- Las Vegas Review Journal Article on LMHF
- Little Miss Hannah’s Legacy Brings Awareness to Rare Disease
- Vanderburg Elementary’s Second Annual WRDDay Event
- Resource Friday: Camp MakeBelieve Kids
- Resource Friday: Maximum Hope Foundation
- Resource Friday: Computers for Kids, Nevada
- Meet Five Local Healthcare Heroes…
Parents on a Mission
- Crowdfunding helps little girl get one step closer to a diagnosis
- Meet Jobyna
- Food Allergies: A Common Problem with an Uncommon Level of Severity
- Shades of Grey
- Can Our Society Afford to Provide Treatments for People with Rare Diseases?
- Bipartisan Action Offers Rare Disease Patients Hope, NORD Says
- Will Patients Bear the Burden for Developing Their Own Treatments?
- Social Security Administration expansion of Compassionate Allowances list