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Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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  • About Us
    • Our Mission
    • Meet our Team
    • Photos/Videos
      • Photos
      • Videos
    • Latest News
    • Our Impact Results
  • Hannah’s Story
  • Programs
    • Medical-Therapy Equipment Assistance Program
    • College Scholarship
    • Childhood Rare Disease Advocacy
    • Family Support and Activities
  • 2022 Tee Up FORE Rare Golf
  • 2023 Vegas Rare 5K
  • Get Help
    • Become a LMHF Family
    • Make-A-Wish Referrals
    • Resources
  • Get Involved
  • Contact us

Articles

This list will be continually updated as new articles are added.  If you would like to submit an article to our blog, please contact us.

 

Childhood Rare Disease Advocacy
  • “Sequestration” and its Drastic Effects for Rare Disease
  • ‘Disease Adovcacy’ Has Changed How Medical Research Is Funded
Education
  • Rare Disease Middle School Education Program
Financial and Insurance
  • Private Insurance and Pre-Existing Conditions for Children with Rare Diseases
LMHF Events and Awareness
  • Little Miss Hannah Foundation receives Genzyme’s Patient Advocacy Leader award
  • Preparing for World Rare Disease Day 2013
  • Rainbows to the Sky Event recap!
  • Las Vegas Review Journal Article on LMHF
  • Little Miss Hannah’s Legacy Brings Awareness to Rare Disease
  • Vanderburg Elementary’s Second Annual WRDDay Event
Local Support
  • Resource Friday: Camp MakeBelieve Kids
  • Resource Friday: Maximum Hope Foundation
  • Resource Friday: Computers for Kids, Nevada
  • Meet Five Local Healthcare Heroes…
Palliative Care
  • Pediatric palliative care centers growing in the United States
  • Pediatric Hospice
Parents on a Mission
  • Crowdfunding helps little girl get one step closer to a diagnosis
  • Meet Jobyna
  • Food Allergies: A Common Problem with an Uncommon Level of Severity
  • Shades of Grey
Rare Disease 
  • Can Our Society Afford to Provide Treatments for People with Rare Diseases?
  • Bipartisan Action Offers Rare Disease Patients Hope, NORD Says
  • Will Patients Bear the Burden for Developing Their Own Treatments?
  • Social Security Administration expansion of Compassionate Allowances list
Relationships
  • Letting Children Share in Grief
  • When Crisis Becomes Chronic: What to do When Friendships Fade
  • Understanding Sibling Loss
  • Helping Kids with a Terminally Ill Sibling

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Tee Up FORE Rare 2022
 

Featured Programs


Medical and Therapy Equipment Grant Program

Site Info

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Contact Us

10624 S. Eastern Avenue, Suite A-847
Henderson, NV 89052
Phone: (702) 608-2488
Fax: (702) 541-9957

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Copyright © 2023· Little Miss Hannah Foundation · Site By New Wave Media Design
Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921