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Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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Latest News

February 25, 2012 by Carrie Ostrea

Vanderburg Elementary’s Second Annual WRDDay Event

On February 24, 2012, Vanderburg Elementary School celebrated World Rare Disease Day by participating in Jeans for Genes day.   The kids and staff were encouraged to forgo school uniforms and wear jeans that day as well as their “Be Kind” shirts (Josh Stevens Foundation), and it was amazing to see such a beautiful sea of denim…

Filed Under: Blog, LMHF News Tagged With: Jeans for Genes Day

January 31, 2012 by Carrie Ostrea

Vanderburg Elementary participates in second World Rare Disease Day Event

On February 24th, 2012, the students of Vanderburg Elementary School are participating in the school’s 2nd annual Rare Disease Day event.  More than 800 students are to spend the last hour of the school day creating denim “gene” ribbons personalized with messages of hope. The projects will be sent to hundreds of American families with…

Filed Under: Blog, LMHF News Tagged With: Jeans for Genes Day

January 31, 2012 by Carrie Ostrea

Helping Kids with a Terminally Ill Sibling

Parents who are caring for a terminally ill child are often overwhelmed with emotion, yet if they have other children at home, they must somehow find the time and energy to help the entire family to cope. Children often share special bonds with their siblings and the loss of one child is sure to impact…

Filed Under: Blog Tagged With: Psychosocial

January 29, 2012 by Carrie Ostrea

Pediatric Hospice

Why would a child need hospice and palliative care? Hospice is not a “place”, rather it is a philosophy of care that addresses the medical, psychosocial, emotional, and spiritual needs of the child and their family. We believe that this care should be available at the time of diagnosis, continue throughout the course of treatment…

Filed Under: Blog

January 24, 2012 by Carrie Ostrea

World Rare Disease Day

World Rare Disease Day is a time when the global community comes together in unity, to build voice, awareness and support for the hundreds of millions of patients and their families affected by rare disease. There are currently just over 7,000 rare diseases identified, affecting 30 million people in the US alone. Although these numbers are staggering, what is of…

Filed Under: Blog Tagged With: World Rare Disease Day

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10624 S. Eastern Avenue, Suite A-847
Henderson, NV 89052
Phone: (702) 608-2488
Fax: (702) 541-9957

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Little Miss Hannah Foundation is a 501(c)(3) tax-exempt nonprofit corporation, EIN# 45-3993921