On Tuesday, February 27, 2013, our Little Miss Hannah Foundation joined a group of 150 patient and parent advocates of rare disease awareness marched on Capitol Hill to meet with legislators. The event was organized by the Rare Disease Legislative Advocates and meetings with representatives from 45 states were arranged. Our first goal was to make…
Legislation
“Sequestration” and its Drastic Effects for Rare Disease
Sequestration is a term to describe the massive across-the-board cuts that the federal government will impose on all non-defense spending starting in January 2013 if Congress does not act to stop it. This was a result of both parties not agreeing on a plan to cut the federal deficit. What does this mean for those of…