Little Miss Hannah Foundation

Support for Families of Children Diagnosed with Rare, Life-Limiting, or Complex Medically Conditions. Childhood Rare Disease Advocacy.

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Robert Ostrea

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My Rare Disease Week in Washington DC 2018

This past week was a very enjoyable and productive week for the more than 400 patient and parent advocates representing one of the more than 7000 rare diseases known to mankind. The last day of February is internationally recognized as Rare Disease Day. This date was chosen since February is the only month with 28 or 29…

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Vegas Cares About Rare Kids 5K on CBS 8 Las Vegas

Thank you 8 News Now and Kirsten Joyce for having Robert Ostrea, Nick Krshul, and Bradley on your show last week. We appreciate all of the support you continue to show our organization and special kids like Bradley with rare and medically complex conditions! Click here to view the video.