Our Vegas Cares About Rare Kids 5K this weekend was just amazing! We were excited to see so many people in our community come out to support our organization and meet our 20+ VIP kids. We are tallying final numbers and we will be sharing our recap update and photos from the event soon. We…
Vegas Cares About Rare 5K
Vegas Cares About Rare Kids 5K on CBS 8 Las Vegas
Thank you 8 News Now and Kirsten Joyce for having Robert Ostrea, Nick Krshul, and Bradley on your show last week. We appreciate all of the support you continue to show our organization and special kids like Bradley with rare and medically complex conditions! Click here to view the video.
Three Students to be Awarded Hannah Ostrea Memorial College Scholarships
We are excited to announce that we will be awarding three local students the $1000 Hannah Ostrea Memorial College Scholarship at our Vegas Cares About Rare Kids 5K on 2/18/2018! We were touched and amazed by the quality of this year’s applicants and their essays they shared about being a sibling affected by childhood rare…
Rare Disease Week 2017
Reprinted from Linked-In The last day of February is designated internationally as World Rare Disease Day and organizations representing patients and advocates dealing with rare diseases come together to raise awareness through local events and activities. Additionally, each year in the United States, hundreds of rare disease advocates convene in Washington, D.C. to meet with…
2017 Vegas Rare 5K photos are up!
Photos from our 5K event have been posted on Facebook. Tag yourself if you see yourself! Thank you for joining us to help celebrate our local rare kids and create awareness for childhood rare diseases on World Rare Disease Day. Event photos | Step and Repeat photos Save the date for next year –…