This year, I will be representing the Little Miss Hannah Foundation at the Legislative Conference & Lobby Day, organized by the Rare Disease Legislative Advocates (RDLA), located in Washington, D.C. This will be a fantastic opportunity to join forces with other rare disease groups and parent advocates to meet with members of Congress to educate…
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Scentsy Fundraiser for the Little Miss Hannah Foundation
Scentsy Party to raise money for the Little Miss Hannah Foundation! (US and APOs) Marie-Luise Smith, the generous woman who donated 20 Scentsy buddies to our organization last month, is hosting a Scentsy Party for our Little Miss Hannah Foundation! She has offered to donate her entire commission to our organization for each purchase at our LMHF…
Newborn Screening Saves Babies, Help Save Newborn Screening
Please take just a minute to sign this and help ensure the vitally important activities of SACHDNC. This is where life saving decisions about newborn screening are made. Please sign and share. The SACHDNC is the only national venue where parents can contribute their experiences and perspectives to the public deliberations on newborn screening. In…
Little Miss Hannah Foundation’s Team for the Make-A-Wish Southern Nevada 5K
On Saturday, February 2, 2013, over 50 runners joined our Little Miss Hannah Foundation team to raise money for our local Make-A-Wish of Southern Nevada as well as to help create awareness for childhood rare diseases. It was an amazing event, and we thank everyone who came out and participated with us! We were able to…
Abigail’s Angels Sibling Support
One of the most heart-breaking side effects of dealing a sick child’s critical needs, is that time, attention, energy and funds are often taken away from the sick child’s siblings. Abigail’s Angels, named after Hannah’s big sister, Abigail, is our program created to give extra attention to the brothers and sisters of medically fragile children. One…