After losing their daughter to rare disease, a Henderson family has created a foundation in her honor BY MICHAEL LYLE (original article) VIEW STAFF WRITER Posted: Jul. 10, 2012 | 12:35 a.m. Even though Hannah Ostrea died when she was 3, her family plans to make sure her name and memory live on through the Little…
LMHF News
Understanding Sibling Loss
One of our biggest concerns during Hannah’s illness, especially during the last few months of her life, was how her disease and her loss of skills and interaction was affecting her older brother and sister. There were very few articles published anywhere on the internet, and the ones we found were mostly discussing sibling…
Vanderburg Elementary’s Second Annual WRDDay Event
On February 24, 2012, Vanderburg Elementary School celebrated World Rare Disease Day by participating in Jeans for Genes day. The kids and staff were encouraged to forgo school uniforms and wear jeans that day as well as their “Be Kind” shirts (Josh Stevens Foundation), and it was amazing to see such a beautiful sea of denim…
Vanderburg Elementary participates in second World Rare Disease Day Event
On February 24th, 2012, the students of Vanderburg Elementary School are participating in the school’s 2nd annual Rare Disease Day event. More than 800 students are to spend the last hour of the school day creating denim “gene” ribbons personalized with messages of hope. The projects will be sent to hundreds of American families with…